My Jessie Journal:: Hi Sweet-Pea! I miss you more every day. It has been 38 weeks since I last held 
you. All I can do is hold your picture and kiss it. Nothing like holding & kissing you.My mind goes back to those last hours we had with you. No parent should ever outlive their kids. It’s all messed up. I’m thinking of becoming more of an advocate and figure out how to make more people not just stand up but show-up and help stop this madness. I watch and watch people raise millions but still little in return. Researchers have spent over 30 years trying to figure out how to treat the tumor that robbed you of your 13th bday. Come on! 30 years of advanced technology/treatment and still nothing.Sorry to vent Sweet-Pea but I hate seeing the pain mommy, Shaya and JT live with every day. Pain I can’t stop. All I can do is hold them and hug them. All they want is their daughter and sister back. You were innocent and did nothing wrong. You should have never had to endure those last hours as we slowly watched cancer win. No child should. Then watching you leave the house haunts me. It was all flat out wrong. Why? Why? Why?
you. All I can do is hold your picture and kiss it. Nothing like holding & kissing you.My mind goes back to those last hours we had with you. No parent should ever outlive their kids. It’s all messed up. I’m thinking of becoming more of an advocate and figure out how to make more people not just stand up but show-up and help stop this madness. I watch and watch people raise millions but still little in return. Researchers have spent over 30 years trying to figure out how to treat the tumor that robbed you of your 13th bday. Come on! 30 years of advanced technology/treatment and still nothing.Sorry to vent Sweet-Pea but I hate seeing the pain mommy, Shaya and JT live with every day. Pain I can’t stop. All I can do is hold them and hug them. All they want is their daughter and sister back. You were innocent and did nothing wrong. You should have never had to endure those last hours as we slowly watched cancer win. No child should. Then watching you leave the house haunts me. It was all flat out wrong. Why? Why? Why?
Then I go and visit kids in the hospital and encourage them to NEGU…it fills my heart with joy and my passion to figure this stuff out. 46 kids a day should not have to be told they have cancer. A child every 4 hours should not have to join you. I will make sure you wish comes true of encouraging all 250,000+ courageous kids to NEGU. That is a promise!!! They need us to “show-up” and care now. Just like you did!!!
I miss you tons, love you more and will see you in a “wink”.
xoxo,
daddy