TeamNEGU Blog

[My Jessie Journal] Hi Sweet Pea, it’s daddy. I could really use a hug right now. Just a little overwhelmed with things going on these days. Hugs are one of the best things in life and I miss you giving me “big squeezes”. I love this picture of us…I was able to care for your at your worst and you always where able to make me feel so proud to be your daddy. 

As you know it’s gala time and close to 700 people are coming to celebrate your life, cheer for courageous kids and help us raise money to help more kids. We need to raise more funds so we can help the new families that sign-up for our Year of Joy program each week. I just get tired of asking for help. I never want people to feel like we are begging. I wish I would win the lottery and pay for everything. BTW, we will be streaming it live on Facebook so make sure you watch it from your Heavenly home=))). That would be so cool!

Shaya is working hard to put the finishing touches on our 18 hour JoyJars stuffing marathon in honor of your 18th Birthday. Hundreds of people have signed up to help us reach our goal of 1,800 JoyJars. We are also kicking off a limited edition t-shirt campaign that day that will run for 18 days. I love the designs Shaya’s friend came up with for them.

We also announce our new gift (resource) to all Courageous Kids and Families on your birthday. We can’t give you a gift so we use your birthday to give a gift in honor of you to the people you wanted to encourage. This new resource will help us encourage kids, super sibs and parents everyday and allow special guests to join us each week. These special guests will include professional athletes, celebrities and musicians. It’s going to be such a great new way to spread more hope, more love and more joy! 

Jess, I miss you so much that my stomach still hurts and my eyes still fill with water but I’m also so proud of you and inspired by you. Thank you for showing me what it means to be joyful in the midst of pain. You always were able to choose joy over sadness and someday I hope I can too. Sadness still fills my heart and mind on a daily basis but slowly more hope, joy and love shows up. I have learned that grief is a joinery that never really ends…it just gets a little easier to walk each day.

I will forever love you and forever miss you. Big hugs Sweet Pea!!!

xoxo
daddy

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