TeamNEGU Blog

My Jessie Journal:: Hi Sweet Pea, it’s daddy! I miss you so much. I can’t believe it’s already June and the start of summer. Five years ago you were just starting to feel better after all of the effects of radiation wore off…the doctors called it the start of the “honeymoon” phase. The fact that they tie anything to do with childhood cancer to the word “honeymoon” is just flat out crazy. I understand what they are trying to share with parents but why not just called it “capture millions of memories”…that is what parents try to do when they know their child is going to lose their fight to cancer.

I guess I should step off my “soap box” and talk about you=). How are you? What have you been up to? Have you met some more friends? I so wish you could write me back and answer those questions and tons of others.

Remember when you would write everyday during your fight in your blog and on Facebook? A new feature of Facebook’s is called “memories”. It’s kind of cool because the pictures of stories pop in your news feed that say…“5 years ago today…” They basically pull out of the history various pictures. This picture popped up on Monday as “5 years ago today…”

I love this pic so much…you look amazing because cancer hadn’t impacted you physically yet…you are smiling, which I always loved seeing…it has to do with your heart of help other kids…it includes mommy…and for a brief moment I didn’t think about your cancer. That was a great 10 seconds of feeling “normal” then it was over. I still love this pic because if has YOU in it!

We have 11 days until the big gala at the Disneyland Hotel…last time we stayed there was with you. It’s going to be a bitter sweet day…but we will NEGU sharing your life and your dream with others. While we will have over 500 at the gala, we are trying to find a way to stream it live on Facebook so all of your fans can watch it. Even you! LOL, I know they don’t have Facebook in Heaven.

Well I got to get ready for a full day of meetings…thankfully many of them involve me talking about YOU=)))…I love being “Jessie’s Daddy”.

Miss you so much….love you tons more…see you in a wink! I promise.

xoxo
daddy

OCregister