My Jessie Journal: Hi Sweet Pea…It’s daddy! I miss you SO much!!!! I love you TONS more. How did you like last weeks video message from the JoyFactory? I’m glad I did it. I got lots of nice notes about it…a few negative ones. Like, “Erik…you look very unhealthy and tired. You need to see a doctor.” I didn’t respond. I sleep 7 hours a day, exercise one hour a day and try to eat good. I think I’m just getting older Jess=). That note was the start of the ups and downs of this last weeks rollercoaster ride. Some days I just wish it didn’t go up or down…just flat!
Let me start with the UP’s…your foundation was selected by Chapman University for full scale marketing and PR plan at no cost to us. When they called I was so blown away. If we had to pay for this type of full scale strategic plan we would pay ten of thousands of dollars. When I went on Monday night to share your story with all of the students tons of them were in tears. They all loved your JoyJars and thought they were a great way to continue to spread the word. I can’t wait to see what they come up with. I go back in May to receive their plan. Yeah Jessie!!!
The other UP is also a DOWN….tomorrow is your big sisters 19th bday…that is totally a big UP…seeing her miss you is the down. I had no idea when the doctors told us you had cancer the amount of shrapnel that would fly around and cause so much pain to Shaya and JT. There simply isn’t a book on how to survive….”I’m sorry. Your child has cancer.” I just love this picture of you two many moons ago. You two were best friends and that is what hurts the most…seeing Shaya have to find her way in life without you in her life.
The other DOWN this week was hearing more and more kids being diagnosed with DIPG. There is a 11 year old boy at CHOC that was this amazing baseball player and now fights for his life. His family is so scared. I was able to get 17 professional athletes to send him little NEGU video messages. I hope we likes them. Then there is this sweet girl in Seattle that is fighting so hard. When I read her daddy’s words it just presses the rewind button of your journey. I truly hope this little girl gets a miracle from the Big Guy…please ask Him for one Jess. If she joins you…please be there for her when she arrives so she has a caring and loving friend to help her. Thanks Sweet Pea!
Well I started with an UP and I will try to end with one….Happy early Valentine’s Day my Sweet Pea. You will always be my Valentine! Love you…miss you…see you in a wink!
xoxo
daddy
