TeamNEGU Blog

10-year-old Ryder was diagnosed with brain cancer in 2017. He is STRONG and Courageous! Ryder loves Fishing, Boating, Swimming, Basketball, Riding 4 wheelers, Family Time, Listening to 21 Pilots, video games!

We NEGU for you Ryder!!! 

Ryder’s mom wrote to us saying, “Jan 13, 2017. Ryder woke up Jan 11th with a headache and vomiting that was relieved with Tylenol. Wed and Thurs he went to school and was playing around the neighborhood with friends. Friday morning, the 13th, Ryder woke up with the worst headache of his life and was violently vomiting. We took him to the ER and requested a ct scan. They found the tumor on the CT scan. Ryder was then transferred to Hershey via ambulance where a team of neurosurgeons waited for us. Ryder had emergency surgery to alleviate pressure on his brain caused too much fluid. We went home Jan 16th. Ryder was healing well waiting for chemotherapy to start. On Jan 23rd, Ryder started leaking CSF from his incision. We were admitted again for emergency brain surgery to alleviate the pressure and fluid build up. They kept him in the hospital for observation and a plan. They decided that while he was admitted they would take him 2 days later for surgery to place his port and do an LP. Then on the 29th his body was producing too much fluid so they decided they needed to take him back for a 4th surgery to place a shunt from his brain to his abdomen. Finally on Feb 9th Ryder was able to start his first round of chemo. He gets 2 medications for 3 days in a row, then is allowed to rest for the next 2 weeks. The cycle then starts all over again for 4 times. After that we will move on to radiation 5 days a week for 5 weeks. Traveling to CHOP every day will be a challenge.  As devastating as it is, we are thankful to see our son rise up to the challenge and fight the battle of his life. Ryder is the most positive, uplifting, determined, awe inspiring person I know. Cancer is not stopping him. We are humbled by the outpouring of support we have been receiving from our entire family, community and friends. This has definitely pulled us closer as a family. We continually thank God for all of the incredibly amazing care Ryder has been receiving. “

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