TeamNEGU Blog

Representative Steve Knight (CA-25) introduced a bipartisan resolution on Thursday that would raise awareness and support research for the common but little-understood form of pediatric cancer that Jessie had, called Diffuse Intrinsic Pontine Glioma, or DIPG. 

This would also establish a national “DIPG Awareness Week” and support expanded research for treatments and care.  “Raising awareness for DIPG is long overdue, and this resolution will help bring us one step closer to ending childhood cancer once and for all,” said Knight.  “Raising awareness for DIPG is long overdue, and this resolution will help bring us one step closer to ending childhood cancer once and for all,” said he said. “Nothing hurts parents more than knowing there’s nothing they can do to keep their children from suffering.

The goal of the bill is to shine a light onto DIPG in the hopes that one day no parent needs to hear those words.

DIPG Bill Text