TeamNEGU Blog

AydenDear Ayden,

To look back and remember the baby boy that bounded out at birth, whose boisterous laughter brought such joy to us all, whose crazy “jumping off everything” antics made our hearts worry and whose sensitive heart has given others such compassion and strength; Ayden you truly are a “rock star” to us.

You once asked what I truly wish for and as we lay in your bed late at night talking of our dreams, crying from the pain of lost days behind us, the thought of life possibly cut too short, not once did you lose sight of what you truly wanted: to be loved. In all my life growing up, I made a wish to the stars and a prayer to God to bless me with a happy marriage, healthy children and a thankful and loved life. I can say I have been blessed many times over and am so thankful for what I have been given in life, but also from what I learn everyday still and a lot of that from you.

You have taught me that my life is not mine alone, but that to share. You make me proud of you every time you stand up and smile, laugh or even get mad at yourself to get better and push on. You give me strength when I know it’s hard for you to move forward. You have not only learned compassion from your dad and I, but you have taught so many others, from friends and strangers, how to open their hearts, eyes and lives to others who need help.

Ayden

My “wishes” have come true, but have yours? Not nearly yet! Wow, the life you have yet to lead…it’s all there, waiting for you to live it! The love you seek is there, from your parents, to three lovely sisters, your amazing friends, teachers and even your nurses all give you so much love you even have to sometimes push us away, laughing at our hugs and words. However, your dreams are safe with me and daddy. We have all whispered them, set them aside in our minds and each know that what you will be “that” dream.

Our wish for you?

Life.
Live the life you want to lead.
Love the life you deserve to have.

As your parents, we will be there by your side, cheering you on, fighting along side you, pushing you when you feel like it’s just too hard. Your strength thus far, fighting for your life through surgery, brain cancer, treatment, therapies; will seem like a cake walk when all is said and done because you, our Rock Star, have already persevered through more in your 8 years then most adults will have within their lifetime. You will be the fighter, the scholar, the athlete, the musician, the husband, the father, the success…whatever you truly “wish” to be…

You are our son, you have an inner strength and you are forever loved.

NEGU Bubba!

Mama & Daddy

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