Zoe has accomplished so much in her 7 years of life! She started displaying delays in milestones at an early age and had global development delays as a toddler. To date she has been diagnosed with Apraxia, ADHD and Intellectual Disability. Shortly after Zoe was diagnosed with cancer, her family discovered she had a genetic malformation, actually a duplication in chromosome 1 called 1q21.1 duplication syndrome. This syndrome is the cause of all of her delays, and it unfortunately also predisposed her to neuroblastoma. Neuroblastoma is not as common in children her age, and genetic cases such as this are extremely rare – only 1-2% annually. Zoe struggles with her speech, but still loves to sing and dance and be silly. She really is quite the character, always trying to do a prank to make everyone laugh. She is quite the fashionista.
At just 7 years old she has decided that mom and dad dont know anything about fashion and she insists on dressing herself each and every day. You cant forget the accessories – the more necklaces and bracelets the better! She is always getting compliments on her large bows and headbands, which she is also quite proud of. She is truly one of a kind, always makes her family laugh and is the sunshine of their lives!
Zoe loves painting her nails and putting on makeup. She is a big “girlie girl”. While in the hospital her favorite past time is arts and crafts. She loves all the colors of the rainbow, the more colorful the better. Her favorite animal is a unicorn of course and her favorite singer is Jojo Siwa. She is obsessed with Jojos hairbows and loves collecting them. Getting dressed up and accessorizing is also one of her favorite past times.
Zoe is the second of 4 children. She has an older brother names Zach (he is 10), a younger brother named Zayden (he is 6) and a younger sister named Zandrea who is 4. To Zoe and her family, NEGU “means faith and hope that we will get through this and will be a stronger family unit at the end of the day because of all we have been through.”
Her mom says, “Zoe LOVES when she gets a joy jar in the mail!! She is always so excited to see what is inside of each jar and takes her time to throughly look at each and every item. It puts a smile on her face, even when she isnt feeling well and for that we are SO greatful!” She says the Jessie Rees Foundation helps by, “Just keeping Zoe happy and a smile on her face with each joy jar makes us feel so content. This is what we live for at times like this.”
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