Meet our brave NEGU fighter James (Jay). Jay is 22 months old and courageously fighting stage 4 neuroblastoma and therapy-related myeloid sarcoma (AML).
Jay is his mom’s and dad’s #1 hero. Jay’s mom tells us that “Jay has twice the character of anyone I know and someday I hope to have half his strength. He has made sure that his story is defined by strength and love. He never gives us even though he has more of a reason to than anyone I’ve ever known”.
Jay has had two rare cancers before the age of 2 and has spent half of his life in hospitals, undergoing painful and terrifying procedures.
We asked Jay’s mom what NEGU means to their family. “We have not been able to live in our home for almost a year. We feel like we have no place in this world; no home, no income, nothing that resembles a normal life. NEGU reminds us to keep going when we feel like there is no way we could continue on. NEGU is a great support when we are lonely and isolated in the hospital. We are on day 32 of our current hospital stay. We feel scared and alone. NEGU has a huge support network that helps us feel supported”- Jay’s mom.
Jay loves playing with his dog, Daphne, when not in the hospital. He finds comfort with his stuffed animals when she isn’t around. Jay also loves to play trucks, balls and loves play-doh and coloring.
Jay’s favorite color is Orange.
Jay’s Treatment- “Jay had surgery and 8 rounds of chemo-therapy for his Neuroblastoma. During his seventh round of chemo he developed therapy-related AML (t-AML) and is currently under-going allogenic stem cell transplant. Jay’s prognosis after the t-AML diagnosis is very poor and we are clinging to the hope that his transplant will buy us some time”- Jay’s mom.
You can visit our super brave NEGU fighter Jay at:
Facebook page: https://www.facebook.com/pages/March-with-Jays-Army/321985167908511?ref=hl
Website: www.marchwithjaysarmy.com
Caring bridge: http://www.caringbridge.org/visit/jamesstargardt